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Update In intensive care medicine: Pediatric intensive care
Available online 27 July 2026

Shared decisions in pediatric critical care

Toma compartida de decisiones en cuidados intensivos pediátricos
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Francisco José Cambra Lasaosaa, Irene Amores Hernándezb, Belén Calderón Llopisb, Antonio Rodríguez Núñezc,
Corresponding author
a Pediatric Intensive Care Unit, Sant Joan de Deu Hospital, Barcelona, Spain
b Pediatric Intensive Care Unit, La Paz Children's Hospital, Madrid, Spain
c Section of Pediatric Critical Care, Intermediate Care, and Palliative Care, Santiago de Compostela University Clinical Hospital, Spain
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Abstract

Making shared decisions in pediatric critical care, either with families and/or other professionals, is not an easy task and may lead to ethical conflicts, especially in children with chronic complex conditions and in end-of-life care. As professionals, we must be aware of these challenges and use the appropriate training and communication skills to develop a care plan that takes into account the best interests of minors. During the decision-making process, we must balance technical and scientific aspects, indications, alternatives, and expected outcomes, considering the goals of treatment as well as the proportionality of the therapies. We must also take into account prognostic uncertainty and the integral physical, psychoemotional, social, and spiritual nuances of the child and family. Whenever possible, anticipated care plans should be consensus-based. These plans should detail the information and communication process, the agreements reached, and indicate the path to be followed by the professionals involved.

Keywords:
Clinical ethics
Decision making
Communication
Therapeutic proportionality
Pediatrics
Mature minor
Ethical climate
Quality of life
Anticipated care plans
Resumen

En Cuidados Intensivos Pediátricos, la toma de decisiones compartida con la familia y otros profesionales no es sencilla y puede dar lugar a conflictos éticos, en especial en niños con procesos crónicos y de final de la vida. Los profesionales debemos ser conscientes de estas dificultades y utilizar los recursos formativos y comunicativos adecuados para planificar la atención y atender a los menores guiados por su mejor interés. En la toma de decisiones se debe balancear los aspectos científico-técnicos como indicaciones, opciones alternativas y pronóstico, con los objetivos del tratamiento y la proporcionalidad de las medidas terapéuticas, considerando la incertidumbre pronóstica y la valoración integral, física, psicoemocional, social y espiritual del niño y su familia. Siempre que sea posible, deben consensuarse planes anticipados de cuidados, que manifiesten el proceso de información y comunicación realizados, los acuerdos alcanzados y establezcan las pautas a seguir por los profesionales implicados.

Palabras clave:
Ética asistencial
Toma de decisiones
Comunicación
Proporcionalidad terapéutica
Pediatría
Menor maduro
Clima ético
Calidad de vida
Planificación anticipada de la atención

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